Yes, I am Scared!

I am scared, I don't know what the next step is. I don't know when things are going to get worst but I know that you aren't going to get better and it scares me. I feel like it can't get any worst. I am scared of losing you, I don't want to loss you, you are my Daddy, and I am you little girl and what will I ever do with out my daddy? I am not scared to admit every time there is a doctors appointment I am scared, I worry, and I don't know what to do. I just wish I could make it all better and all go away, for you , for everyone. I have found over time that being scared is not a sign of being weak, it is a natural feeling and if  I wasn't scared I think I would be worried why I wasn't. Alpha has changed my life forever. It has made me fear so much, fearing loss, and sickness. I am scared everyday. People tell me to just enjoy the time I have which I try my best to do but that's extremely hard when there is so much stress surrounding the situation. It is one of those things that if you don't live through it you don't completely understand. Its been extremely scary for me and I am not worried about letting people know that I am scared. I think the word scared is probably an understatement. I think anyone going through watching someone they love so much suffer from any kind of illness can relate to what I am saying about being scared. At one time or an other I think everyone experiences its just on what kind of scale. For me as of right now I know as long as my daddy is here I will be scared and worried. The alpha will never go away but there is one thing that can help me get through being scared, HOPE! Having Hope that a cure can be found and that alpha can be gone forever. Being scared is ok but having HOPE will help the scared feelings fade for at least a little while.

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