My Story

This is my first post in what I hope to be a list of many. I want to share with you what it is like to live in a family that is deeply affected by a disease called Alpha-1. Alpha-1 is a genetic disorder that causes lung and liver disease in people of all ages. (For more information please visit http://www.alpha-1foundation.org/ ) My dad was diagnosed with the disease 2 years ago after many years of struggling to find answers. The disease has caused a physical and emotional strain on my family and many others through out the world. Alpha-1 is widely miss-diagnosed and when I tell most people that my dad has a genetic disorder called Alpha-1 they look at me as if I were an alien from mars. Then I go into what I call the short explanation of what alpha is and then most of them say “I’ve never heard of that” or “wow I didn’t even know something like that existed”. So this is my way of letting people know that yes there is a disease that is genetic that causes lung and liver disease and yes it does effect many people even though you have not heard of it before. I want to share with you my story and how it has affected my life. I hope that you find the posts interesting and informational. This is my life: Living with alpha-1